Pilot Study for a Better Integration of Research and Clinical Care
Pilot study for a better integration of research and clinical care: Improving research preparedness, access and patient reported Outcome collection
Participating Sites and National Principal Investigator
Dr. Laurence Watelle
What Do We Want To Know?
This project aims to make it easier to routinely collect children’s and families’ own reports about their health during clinic visits and to ask if they are open to being contacted for research. The goal is to create a simple system in pediatric clinics that improves patient-reported data and builds a registry of families willing to participate in future studies.
How Are We Doing It?
This project focuses on planning how to add a simple research consent process into routine pediatric clinic visits without disrupting care. We will consult clinicians, patients, ethics experts, and hospital staff, design a user-friendly web tool, explore integration with electronic medical records, and gather feedback to prepare for a pilot launch.
How Is The Project Going?
The system for sending information to doctors is still being developed. Patient and physician enrollment is expected to begin in spring 2026, with the goal of completing all questionnaires by fall 2026.
Who Is Included?
This project patients who’ve attended routine pediatric clinic visits, as well as their families.
Image of science/lab equipment